Every year, 26,000 babies are stillborn in America. In 2003, one of them was my son.

Friday, July 25, 2008

Hanging Here in Space

That Christmas, before Ben died, my husband or daughter, I don't remember which one, gave me the Sacred Love CD by Sting. We listened to it that day, though not thoroughly enough for me to really hear the songs and learn the words. As it turned out, I didn't listen to it again before Ben died, and in the months that followed, I couldn't listen to any music at all.

About six months after his death, I started listening to music again, CDs that I thought would be safe, that wouldn't make me cry. And I pulled out Sacred Love in my car one day as I ran errands, cruising along in the sunshine of a late-spring day, though my thoughts were always, always, on Ben.

It's a post-9/11 album, both in release date and in content. Sting sings of war, love, memory. I wasn't expecting to find a song that would make me gasp for breath and have me sobbing halfway through, but one song, "Dead Man's Rope," nearly did me in that day, and on many days since. The lyrics took my breath away, felt just exactly right for where I was in my life: drifting, walking away from one thing and trying to walk into another, walking away from emptiness and devastation. I searched online to see just what Sting was thinking when he wrote the song, but found only a short commentary, that it is about a man trapped in a "well of memory", needing to deal with reality. I think it's a little more religious than that, at least for me, but I'll let you judge:

Dead Man's Rope
"A million footsteps, this left foot drags behind my right
But I keep walking, from daybreak, 'til the falling night
And as days turn into weeks and years
And years turn into lifetimes
I just keep walking, like I've been walking for a thousand years

Walk away in emptiness, walk away in sorrow,
Walk away from yesterday, walk away tomorrow,

If you're walking to escape, to escape from your affliction
You'd be walking in a great circle, a circle of addiction
Did you ever wonder what you'd been carrying since the world was black?
You see yourself in a looking glass with a tombstone on your back

Walk away in emptiness, walk away in sorrow,
Walk away from yesterday, walk away tomorrow,
Walk away in anger, walk away in pain
Walk away from life itself, walk into the rain

All this wandering has led me to this place
Inside the well of my memory, sweet rain of forgiveness
I'm just hanging here in space

Now I'm suspended between my darkest fears and dearest hope
Yes I've been walking, now I'm hanging from a dead man's rope
With Hell below me, and Heaven in the sky above
I've been walking, I've been walking away from Jesus' love

Walk away in emptiness, walk away in sorrow,
Walk away from yesterday, walk away tomorrow,
Walk away in anger, walk away in pain
Walk away from life itself, walk into the rain

All this wandering has led me to this place
Inside the well of my memory, sweet rain of forgiveness
I'm just hanging here in space

The shadows fall
Around my bed
When the hand of an angel,
The hand of an angel is reaching down above my head

All this wandering has led me to this place
Inside the well of my memory, sweet rain of forgiveness
Now I'm walking in his grace
I'm walking in his footsteps
Walking in his footsteps,
Walking in his footsteps

All the days of my life I will walk with you
All the days of my life I will talk with you
All the days of my life I will share with you
All the days of my life I will bear with you

Walk away from emptiness, walk away from sorrow,
Walk away from yesterday, walk away tomorrow,
Walk away from anger, walk away from pain
Walk away from anguish, walk into the rain."

I've been sitting here with my laptop trying to explain to you what this song meant to me, and I find I can't. It's tied too much to that time, it's too deep in my soul for me to make sense of to anyone else. But that emptiness, that sorrow, the notion of walking away from everything, but still being "led here to this place" - that's where I was, hanging in space. Waiting.

Thursday, July 17, 2008

Days Like This

Ok, folks, bear with me. I'm going to whine. (I've been hearing so much whining from my daughter that it has rubbed off.)

I'm exhausted. Not sleeping well - too hot, too stressed out, too much on my 'to-do' list worrying me. Summer has officially become too long this week; my kids are between camps and lessons and the constant requests for something to do, to phone a friend, the 'I'm-boreds,' the 'why-won't you-let-me's,' the, 'this-is-the-worst-day-of-my-life' screaming fits . . . well, I've had enough. I feel totally unappreciated and unacknowledged. Parenting is the best thing I have ever done and the hardest thing I've ever done. No one tells you that, while you're raising your kids, they won't appreciate you, they won't say 'thank you' unless reminded 18 times, they will demand as much of you as they can get and they won't respect the fact that you are exhausted, have a need for time to yourself, or are trying to make dinner/pay bills/clean/have a conversation on the phone . . . .

What's in order for me right now is a good massage, a pedicure, and a big, big margarita. (And none of those things are going to happen, especially not the margarita as it is currently 10:30 in the morning.) I am feeling sorry for myself, but I'll get over it. Thanks for indulging me.

Tuesday, June 24, 2008

Half Sick of Shadows*

"You don't smile enough," he said. "You never did."

I smile less now than before. So does he. Last summer we went to see The Police in concert, and when Sting came out on the stage, I started jumping up and down and screaming like a teenage girl. (I heart Sting.) He turned to me then and said, "I haven't seen you smile like that in...I don't know when." And it was true, and his words pricked at the dead place in my heart, that lump of ash that sits in the center of my chest.

And a few weeks ago, on a rare night when I smiled, when we laughed the way we used to, he said those words to me. I told him how, a few months ago, I found myself laughing at something, I can't recall what, but I was laughing one of those deep belly laughs that make your stomach muscles hurt and the tears flow from your eyes. And I realized, I hadn't laughed that way in years. Four, to be exact.

I've always been serious. Many times I was told, when I was younger, that I was older than my years. And I was. I am prone to depression - with the diagnosis and medication to prove it - so a sunny disposition has never really been my thing.

I've lost my joy, what little of it I ever had. And I'm tired of not experiencing joy. Life is too short. Stop yourself and say those words out loud, slowly (yes, you. Now). Life is too short. It's more than just a cliche, it's true. I want to find joy again, and I am declaring to you now that I am going to find it. There are too many shadows, and it's time to sweep them away. I will not live out the rest of my life like this.

* "'I am half-sick of shadows,' said the Lady of Shallott," from the poem The Lady of Shallot by Alfred, Lord Tennyson.

Tuesday, May 27, 2008

Inverted

My husband and I were talking last night; we have both been feeling down recently; he is still working out his grief for Ben - he's had so much trouble grieving, and I haven't known how to help him. At times I haven't tried very hard to help him, either.

Last night he said, "I feel like our lives are inverted." I asked him what he meant, and he said, "It's supposed to be happiness interspersed with moments of sadness, but it's really sadness interspersed with moments of happiness."

Is that how it is from now on? After four years, we really still don't know.

Thursday, May 22, 2008

What Do You Want to be Remembered For?

Yesterday evening, while standing at my kitchen sink washing dishes, my son called out to me from the living room, "Mommy? Pway?"

"In a minute, honey," I replied. "Let me finish these dishes."

"Minute?"

"Yes, honey, minute."

***

My husband and daughter were out on a bike ride and I was trying to finish up those few little chores before bedtime, always multi-tasking, always hoping to do just one more thing. I haven't really been mentally present with my family recently, wrapped up in this book I am writing, and, this week, with more sad news from home. Two wonderful parents were on their way home from their daughter's college graduation, with their daughter and all her stuff in the car, when they were struck by a large truck, which had swerved to avoid a minivan that had, apparently, run a red light. The parents died instantly; their daughter, a beautiful, intelligent, caring and giving 21-year-old, is in critical condition in the hospital. She has endured 6 hours of brain surgery and has multiple broken bones and internal injuries and is currently in a coma.

This is what I was thinking about when I was doing the dishes last night, along with the rest of my to-do list, and how I couldn't wait until the children were in bed. With my hands deep in the warm, soapy water, my son called out to me, again, "Mommy? Minute over?"

***

I'd been following the story of the crash online and knew that this young woman's mother was a teacher. I remembered her, and her sunny, positive outlook on life. She'd had trouble getting pregnant and had her first child at 33, her second at 37. Warm, funny, energetic, she touched so many lives through her teaching, because she took the time to listen to her students, to bring out the best in them. One assignment she made her 8th graders do every spring was to write a letter to their future selves, stating what they want to be remembered for, who they want to be. Four years later, on their graduation day, she would deliver those letters from their past selves to remind them of what they had hoped for in their lives.

***

And who do I want to be, I asked myself as my son said, yet again, "Mommy pway?" Do I want to be remembered for being thin (which I am not), for having a good wardrobe, for having a tidy house? For always having my dishes done, nary a weed in my garden, for the things I own?

No. I want to be remembered as a great mom, a caring person, someone who made the world a little better after she left it.

***

I put my sponge down, dried my hands, and said, "James, what do you want to play?"

***

None of us is promised a long life. None of us is promised tomorrow.

***

Who do you want to be?

Saturday, May 17, 2008

Pregnancy after Baby Loss

If you've been reading Glow in the Woods, you'll know that bon just put up a post on being pregnant after a loss. (Glow in the Woods is a new blogging community of several babyloss mamas; it's terrific, {as if anything about babyloss could be terrific, but these women are so articulate and write so beautifully}, so head on over and say hello.)

Her post has given me so much food for thought; she is 20 weeks pregnant and fearful, hopeful, terrified. She is on bedrest and....managing? Yes, managing as well as any babyloss mama can. Bon asks the question how we feel about pregnancy now, and oh, I have so many mixed feelings. So much to say.

I want to be pregnant again. Sort of. But not really. I want a baby. I am also mourning the loss of that possibility in my life, although it is, still, physically possible, but emotionally, I am not so sure. I am rapidly approaching the end of my "safe" reproductive life - I am well into "advanced maternal age" and while there's no reason I couldn't have a baby again, it is very unlikely I will. I am both jealous of those who are pregnant and holding new babies, and frightened for those whose bellies I see protruding. I know I am a harbinger of death for those among my group of acquaintances who get pregnant; I see the spark of fear in their eyes, the slight distance they put between us, for I have shattered their innocence by losing my son.

Bon talks about "owning the elephant" in the room...I love that phrase. I'm not sure I own the elephant; perhaps it is easier now to pretend I'm not the elephant in the room of a group of mothers and hopeful mothers. But I still feel it, that distance, that experience that sets me apart from all the rest. It holds me back from becoming friends with the lovely women I meet at storytime with my 2.5-year-old; those women who are showing up pregnant at the library, at James's gym time, in the neighborhood. It keeps me from becoming friends with the moms at Charlotte's school, whether they are done having children or still expanding their families. It keeps me from feeling like I am truly being myself with nearly everyone, and I hate feeling that way. Part of me has closed off permanently to others, even to myself. I don't know what to do with the dead baby part of my life, so it just sits there, quietly waiting.

It is so hard to see other women pregnant, and I suspect it always will be. I met a woman shortly after Ben died - I knew her only slightly before then - she lost a baby some 30 years ago. He seemed fine when he was born, but died unexpectedly sometime in the first 24 hours of his life. She told me a little about her experience, and mentioned that the daughter of a friend of hers was pregnant, and how terrifying that was for her. That is where I am now, and permanently.

I see younger mothers at my son's preschool, who are expecting, and I feel...I hate to say this, it seems so awful...disdain. Perhaps it is because they are driving in their SUVs, with enormous diamonds on their fingers, designer clothes, manicured nails...which is not my thing...but their personas shriek entitlement, and perfection. And they barely see me, a late-30s, average mom, with perhaps 10 pounds to lose, fairly attractive, wearing reasonably-priced clothes, who doesn't believe in ostentation, who doesn't play tennis or go to a gym to work out with a trainer, who doesn't run with cliques and never has.

I alternately hate those mothers and feel sorry for them. Mostly I hate them. Because they are pregnant, and they are blissfully unaware as they drive off in their Audis and Suburbans that anything can go wrong. And if they knew my story, if I told them, I know they would look at me in horror and never speak to me again. And of course I wouldn't tell them, could never tell a pregnant woman who did not know me "before," what it is that makes me who I am "after." I'm sorry for them because I feel they don't live in the real world, which makes me a snob of a different sort from them.

Ultimately, here's how I feel about pregnant women: after Ben died, I thought no one should get pregnant ever again. It hurt too much to hear about, hurt too much to see, made me feel so frightened. I can't shake that. I fear for any pregnant woman I see and only wish I could be happy for them. That I will carry for the rest of my life.

Strangely, last night I dreamt I went to my OB for my annual check-up, and we talked about me having another baby. I don't remember what we said, only that I hoped it wasn't too late for me, even though I didn't think it would happen again for me. I am conflicted; I both want to be pregnant again, one last time, and I know that, emotionally, I can't do it again. If it were to happen, of course I would, but deliberately? I don't see how I could.

I know how much there is to lose.

Wednesday, May 7, 2008

What Do You Do For Mother's Day?

The first Mother's Day after Ben died, I remember someone telling me, well, at least you are a mom. And yes, I was. I've never had to deal with Mother's Day with one dead child and no living children. I'm pretty sure that would be akin to one of Dante's levels of hell. And that day was hard; my husband had been away on business (out of the country, no less) for two weeks, and was traveling home on Mother's Day. My daughter had been particularly sweet that weekend - she seemed to understand that I needed a little extra love that year. I held it together by mostly not thinking about it until people started to call me and see how I was doing.

The second Mother's Day after Ben died, I realized that this was it - no matter how many years went by, two, 10, 33, 50 - no one was going to phone me up to ask how I was doing anymore. But I was going to remember that one of us was missing, one of us was not here to give me hugs and kisses, handmade cards, or breakfast in bed. That's it - you get the first year, and then you're done. Or, that is, the rest of the world is done. I'll still miss him in 20 years, and think of him on Mother's Day. Will anyone else, besides my husband?

And for those of you who are reading this, who are missing your babies, whether you have living children or not - I am so, so sorry for your pain. You are mothers, not the way you should be, not the way you want to be - and I honor you, and your children, this Sunday, and always.

One thing I will do this weekend to honor Ben is go to this website and light a candle. For every virtual candle lit in honor of a baby who never made it home, the website Memory-of.com will donate $1 to First Candle, the support organization for parents who have lost children. First Candle's mission is to make sure every baby makes it to their first birthday healthily and happily. You can light a candle any time in the month of May. Memory-of.com is also donating $1 to Susan G. Komen for the Cure for every candle lit here in memory of a mother, grandmother or godmother who has died. I will also light a candle for Elizabeth, who I am missing terribly right now.

Hugs to all of you missing your babies.